Privacy Policy
This Privacy Policy applies to Sobi’s Investigator Sponsored Studies (ISS) portal (the "Sobi ISS Portal"). Please read this Privacy Policy carefully and feel free to contact us if you have any questions.
This Privacy Policy explains what personal information may be collected and processed about you when you submit an application for support of an ISS via the Sobi ISS Portal and how we use that information. It includes a description of your data privacy rights.
Data Controller
Swedish Orphan Biovitrum AB (publ) (“Sobi”), with registered offices at SE-112 76 Stockholm, Sweden, e-mail address privacy@sobi.com, will collect and process the information you provide.
Personal data
We will collect the following types of personally identifiable information, name, profession, medical license number (if applicable), contact information, place of employment, address and IP-number.
Legal basis for processing and how we will use personal data provided by you
The personal data you provide will be processed by Sobi for the purpose of our legitimate interest in order to provide the service related to the Sobi ISS Portal.
We will not use your personal information for marketing activities unless you have explicitly consented to receive marketing communication from us.
How we may share your personal data
Sobi may use third party contractors when providing service related to the Sobi ISS Portal and may share your personal data with them. They are restricted from using the data for any other purpose other than to provide services related to the Sobi ISS Portal. Sobi is responsible for any processing by such third parties and will ensure that such contractors have entered into written agreements allowing Sobi to comply with our obligations under this Privacy Policy and applicable laws. Your personal data will not be disclosed to any other third parties unless you have explicitly given your consent to such disclosure or if it is required by law.
Transfer of data outside the EEA
The personal data you provide may be accessible or transferred to our affiliates, vendors or suppliers in other countries, including countries outside the European Economic Area (“EEA”). The level of legal protection for personal data is not the same in all countries and may not provide the same level of protection as the data protection laws in the EEA or of the country in which you live. In case of such transfer, Sobi will take reasonable efforts and security measures in an effort to keep your information secure, and Sobi is responsible to ensure that the transfer takes place in accordance with this Privacy Policy and applicable laws. You may contact us at privacy@sobi.com if you have any questions about the methods we use to safeguard any personal information transferred outside the EEA
Retention and erasure of personal information
We will retain your information only for the period necessary to provide the services related to your application submitted on the Sobi ISS Portal unless a longer retention period is required by law.
Information regarding your rights
You will at any time have the right to access your personal information, to have it rectified, erased or to transfer it to other organizations at your request. You also have the right to object or to restrict some processing. If you have any questions, requests or complaints about how we process your personal information, simply write to us using the email address:privacy@sobi.com. If you have any comments or complaints regarding the way your personal data is being handled, you have the right to contact the supervisory authority in Sweden (Swedish: Integritetsskyddsmyndigheten , see this Kontakta Integritetsskyddsmyndigheten - Integritetsskyddsmyndigheten (imy.se)) or in the country where you live, to lodge a complaint.
Contact
We welcome any questions, requests, comments and complaints that you may have regarding this Privacy Policy. Please do not hesitate to reach out to us by writing an e-mail to privacy@sobi.com.
Just a moment, the page is loading...